Stuart Bruce gave me a hat tip for the NetDisaster thing so I hopped over to see what he’s up to. On his site I found a link to MND – Motor Neurone Disease Association’s site or rather that of Jon’s Journey. Why am I talking about this on a site like this? It’s a terrible illness that affects around 5,000 people in the UK each year. It has no cure and is absolutely relentless. It’s frequently mis-diagnosed as a British GP is unlikely to see more than one case throughout their practicing career. If they see one at all.
Professor Stephen Hawking is a sufferer and the longest known survivor at 35 years. Life expectancy once you have it is between 2 and 10 years. Essentially the body stops functioning though the mind and senses remain intact. It usually kills through an infection or the inability of the chest muscles to continue supporting breathing. In other words you suffocate. It affects more men than women. It is a dreadful way to die.
It’s killed some very well know people – actor David Niven, football coach Don Revie and my mother. Mum died the morning of my partner’s birthday – February 23rd, 2004. The last time I saw her was the end of January, 2004. She could not move, speak or look after herself in any way and required 24 hour care. She survived 3 months from the time when it was finally diagnosed. We still miss her. And that’s why there’s a clickable logo on this site.
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